Longitudinal Investigation for Enhancing Down SyndromeSeptember 5th, 2019 at 7:00pm

You are invited to attend an information session about the Longitudinal Investigation for Enhancing Down Syndrome Research (LIFE-DSR) Study. Brian Chicoine, MD, the Principal Investigator for our site, will explain the study, why it is being done, and what is required of study participants. There will be time for Q&A.

DATE: Thursday, September 5, 2019
TIME: 7:00pm to 8:30pm
LOCATION: Johnson Auditorium (ground floor of Parkside Center), 1875 Dempster St., Park Ridge, IL 60068
RSVP: adsclifedsr9519.eventbrite.com

The Adult Down Syndrome Center is one of 11 research sites participating in the LIFE-DSR study, a project of the Down Syndrome Clinical Trials Network (DS-CTN). This study is an observational investigation with the goal to better understand the cognitive and behavioral changes along with the health issues found in adults with Down syndrome as they age and potentially progress toward Alzheimer's disease. 

The study lasts 2 years and includes 3 visits (screening/baseline, 1 year, 2 years). At each visit, participants will have a history and physical exam, get their blood drawn, and participate in memory/neuropsychological testing. This is not an interventional trial; no new drug treatment will be tested during this study. Eligible participants are individuals with Down syndrome who are 25 years of age or older and have a study partner who is able to attend study visits. 

To learn more about participating in LIFE-DSR at the Adult Down Syndrome Center, please contact Monika Kapinos, Study Coordinator at 847-723-2243 or [email protected]. 

DISCLAIMER - The purpose of this information is to share items of interest relating to Down syndrome and other disability issues. It is sent by Teri Ehrenhardt for educational purposes and does not necessarily reflect the views of The Heart of Illinois Down Syndrome Association (HOIDSA). 

HOIDSA does not promote or recommend any therapy, treatment, institution, professional system, political affiliation etc. and any information contained herein shall not imply such